Mike came home Thursday morning from the hospital and is doing fine. He had some intestinal blockage (actually it's called a small bowel obstruction - but it is in the lower part of the intestines) from scar tissue from a surgery he had when he was a kid. He has some lingering headaches from the drugs but otherwise great. Don't know if he will pursue surgery in the future or not. It is hard to schedule a surgery and take time off work when you are feeling good. But, this scar tissue has caused him trouble for 15 years now...I think he is done.
Matthew saw an Endocrinologist this week. It was our first visit. I LOVED this doctor! We went to him looking for an answer to why Matthew's sodium is being depleted so quickly and just since December 08. He also is way off the charts for growth and so we are looking into his growth hormone stuff to see if he needs any help in that area.
We were there a total of 4 hours and left with lots of ideas but of course answers won't come for several weeks. They took 15 vials of blood (no, that's not a typo) 15! Matthew just sat and watched...it didn't seem to phase him at all. I would be passed out on the floor. He got a shot of hormone in his arm to check his cortisol levels, a hand and wrist x-ray to check bone age and we found out that one of his legs is longer than the other by a pretty good amount. We never noticed this before.
I also got a great reminder of what miracles we have received. This doctor was the 3rd medical professional this month to tell me that they are amazed at how great Matthew looks and that watching a kid with Hypoplastic Left Heart Syndrome walking around, playing...alive... is so amazing to them. I love to hear it! It makes me so much more grateful for our blessings. He truly is a miracle and I am blessed to be a part of it! We try so hard to make his life as "normal" as possible that sometimes I forget how fragile he really is. He's awesome!
Of course we HOPE that the tests show nothing is wrong BUT it is hard for me to just put bandaids on things and not know the WHY! So, we will busy ourselves the next few weeks and try not to think about it until results are in. Luckily, there is plenty to be busy with! Trying to get an IEP for this kid...UUGGGHHHH!
4 years ago















