Good report

Here is a You Tube link to video of my speech at Children's last week. The last line is missing from the video because they needed to seat someone important right then and there. Maybe when the hospital gets me their copy I can post it along with the ribbon cutting and pictures with Matthew and his Doctor. I love that Isaac is playing with Mike's face, totally unaware of the 200 people watching him.
http://www.youtube.com/watch?v=soB5YG8k2Dc

Matthew had great news yesterday from cardiology. His doctor said he has never seen him look so good. His x-ray was crystal clear...he thinks opening up that obstruction in the aorta and getting his heart rate up is really helping keep his lungs clear and working better. His echo looked fantastic! Heart function is great. There is still a small portion of the aorta that is more narrow than the rest but it is not slowing anything down at this point. Pacemaker is working perfectly and giving a battery life expectancy of 8 years. Matthew has lost a few pounds but it is unclear if that was fluid weight or not. He has been eating well and not having his migraines with vomitting at all so I can't believe he has lost weight for any other reason but fluid. We get to go up on fat to 2 grams a meal and then if he tolerates that well we can even try 3 grams a meal. This will help the growth hormone replacement work better that we will be starting in a few weeks. Very exciting!

Yesterday was our last visit with our Cardiologist who is retiring in December. We will miss him! He has been wonderful!

Noah also had a great day yesterday. He won the milk tops contest at school having the most milk tops in his grade. He got this gift bag full of goodies that he was very excited about.


We are looking forward to a few days off and spending time together! Happy Thanksgiving!