Monday, September 26, 2011

Medical Updates

Isaac's eye has been getting worse so we are now patching every day for 2 hours and he got a stronger perscription...so new glasses.

The glasses above are his old pair...the ones below are the new pair.


We also finally submitted to our insurance for a pump for Isaac. We've been putting it off because it's going to be some work to re-learn everything and we are already overwhelmed. Also, Isaac didn't really care for the pump when we tried the dummy so I'm a little nervous about how he will handle it. After him protesting getting new glasses last week though...I'm convinced he just doesn't like change and will get over it just fine. We should have that done in the next month or so.

We FINALLY got Matthew up to a full dose of his growth hormone last week and now he has puffy eyes and a wet cough again. We have to stop it and go back to a smaller dose...again! So frustrating! This new medicaton is different than his last one just a little bit. This company wants you to keep it in the fridge all the time where the other one you just kept it in the fridge until you were ready to use the pen and then you could leave it at room temperature for days and days (like insulin). So, it's cold and it hurts going in. I'm tempted to give up on this. Is it really worth it? We've been at this 9 months and nothing but trouble so far. Grrr!

Matthew also (Not surprisingly!) ended having a positive antibody for Diabetes. It was very weak and only 1 of 3 they look at I guess so they will retest. This only means that his chances of getting Diabetes is slightly higher than a normal person. It does not mean that he has diabetes or will ever get diabetes. Just another thing to watch for. This makes 3 diseases to WATCH for on him. The doctor just said... "Well, he's definately brewing up something!" Thanks Doc and to all the beautiful auto-immune genes we ended up with!

Joshua and Noah are perfectly healthy as usual.

2 comments:

  1. You must have some huge book you keep all this info in. I don't know how you keep up on everything and keep it all straight. You're amazing. Sorry things aren't going the way you'd hoped with Matthew.... dang it!!

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  2. I agree with Pat and Jim. I have trouble remembering which of my children is allergic to penicillin. How do you do it?

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